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The AAOS Musculoskeletal Tumor Registry


The AAOS, in collaboration with the Musculoskeletal Tumor Society (MSTS), announced the launch of a Musculoskeletal Tumor Registry (MsTR) feasibility pilot in December 2018. The goal of the pilot was to begin capturing data on orthopaedic oncology bone tumor procedures in a structured and scalable way. The decision was made to broaden the MsTR program from a pilot to a full registry at the end of 2019. The MsTR is the third subspecialty registry to be incorporated into the AAOS family of registries.

The collaboration involved six pilot sites from major U.S. academic centers. The MsTR pilot sites were large, academic referral centers serving a regional population of sarcoma patients. Each site was charged with using individual institutional resources and workflows to determine the most efficient, simplest, and most accurate methods to capture and submit data. Learnings from the MsTR pilot translated into templates and lessons that will inform future work on the Registry.

MsTR Data Elements Collected

MsTR data elements include but are not limited to patient demographics, patient baseline and examination, tumor baseline, treatment and post-treatment, and surgery detail along with post-operative data (oncologic failure, surgery complication, vital status) and patient-reported outcomes as conveyed in applicable instruments.

Baseline

Patient

  • Name (Last, First)
  • Date of Birth
  • Social Security Number
  • Diagnosis (ICD-10, CPT)
  • Gender
  • Race/Ethnicity
  • Height + Weight/Body Mass Index
  • Payer Status

Site of Service

  • Name and Address (TIN, NPI)

Surgeon

  • Name (NPI)

Surgical Intervention

  • Procedure Type (ICD-10, CPT)
  • Date of Surgery
  • Implants
  • Details Surrounding Surgery Type
  • Comorbidities (ICD-10, CPT)

Non-Surgical Intervention

  • Chemotherapy
  • Radiation
  • Clinical Trial

Tumor Baseline

  • Size
  • Metastasis at Diagnosis
  • Margins
  • Tissue Type
  • Biopsy Type

Encounters and Patient-reported Outcomes

Encounters

  • Comorbidities (ICD-10, CPT)
  • Hospital Admission
  • Procedure (ICD-10, CPT)
  • Diagnosis (ICD-10, CPT)
  • Recurrence
  • Chemotherapy
  • Radiation

Patient-reported Outcomes

  • PROMIS-10 Global
  • VR-12
  • MSTS
  • TESS

Interested in viewing the Data Specifications or Data Dictionary for MsTR? These documents are proprietary and can be accessed in the Tools & Resources tab on AAOS RegistryInsights®. For more information, please contact AAOS Registry Program staff at RegistryInfo@aaos.org

MsTR Data Submission

After MsTR participating sites collect the necessary data elements, they submit their data through the AAOS RegistryInsights® data upload process via a secure file transfer protocol (SFTP) or hypertext transfer protocol secure (HTTPS).

A few data submission best practices include:

  • Submitting data monthly
  • Consulting with your site’s IT team to set up automated reports
  • Monitoring data submission uploads and addressing errors

For more information about MsTR data submission, click here.

MsTR Participation Benefits

Participating in MsTR provides access to sitewide, systemwide, and nationwide data. Reuse of Registry data has value to certifying bodies, quality reporting, reimbursement, and quality measurement efforts.

A few top benefits of MsTR participation include:

  • Understanding your site’s performance to help reduce complication rates with post-operative data
  • Surgeon Dashboards that can help attain up to 10 Self-Assessment Exam credits for the American Board of Orthopaedic Surgeons Maintenance of Certification program
  • Qualified Clinical Data Registry status that can help physicians qualify for the Centers for Medicare & Medicaid Services Merit-based Incentive Payment System Promoting Interoperability category (previously known as Meaningful Use) and the Quality Payment Program

Learn more about MsTR participation benefits here.

Learn more about the quality initiatives that MsTR can help meet here.

MsTR Leadership

The MsTR Steering Committee is comprised of surgeons that are vested in improving orthopaedic care. The 2020-2021 MsTR Steering Committee members include:

  • Benjamin J. Miller, MD, FAAOS, MS, Chair
  • John A. Abraham, MD, FAAOS
  • Megan E. Anderson, MD, FAAOS
  • George T. Calvert, MD, FAAOS
  • Eric R. Henderson, MD, FAAOS
  • Adam S. Levin, MD, FAAOS
  • Nathan W. Mesko, MD, FAAOS
  • Peter Rose, MD, FAAOS
  • Mark Scarborough, MD, FAAOS
  • Kristy L. Weber, MD, FAAOS

MsTR Pilot Sites and Key Surgeons

  • Cleveland Clinic Foundation
    Nathan W. Mesko, MD, FAAOS; Luke M. Nystrom, MD, FAAOS
  • Dartmouth-Hitchcock Medical Center
    Eric R. Henderson, MD, FAAOS
  • Johns Hopkins Medicine 
    Adam S. Levin, MD, FAAOS
  • Ohio State University-The James Cancer Hospital 
    Joel L. Mayerson, MD, FAAOS
  • Stanford Health Care-Stanford Hospital 
    Robert J. Steffner, MD, FAAOS
  • University of Iowa Hospital and Clinics
    Benjamin J. Miller, MD, FAAOS, MS

Enrolling in the MsTR is Easy

Your site can join the MsTR in 5 simple steps. Learn about the enrollment process here. Visit the AAOS Registry Program FAQs page for more details about Registry Program participation. If you have additional questions about joining the MsTR, please email RegistryEngagement@aaos.org or call (847) 292-0530.

Sarcoma Patient Stories

The AAOS and the MSTS have joined forces to bring you some uplifting patient/surgeon stories. Together, we are working towards analyzing data to aid in finding a cure for sarcoma. View the patient stories here.

Support the MsTR through Donations

The MsTR is committed to improving patient care through the collection, analysis, and reporting of actionable data. Your support can help in our mission. To donate to the MsTR, click here.